Tag Archives | cancer

How Poor SEO Approaches Can Damage a Brand and the Implication if That “Brand” is a Leading Cancer Charity

cancer researchI don’t want this blog to turn into a long list of posts where I moan about SEOs, but I had an approach yesterday that had me bashing my head against a wall.

It started well -

“Hope you’re well. I just wanted to get in touch to ask about your policy on guest posting on Mum’s the Word. I’m working with Cancer Research UK, to build awareness of the breast cancer help and resources offered on their site. We’re doing this chiefly by putting together some informative articles on related topics and working with bloggers like yourself to publish them on selected sites around the web, and I was wondering if you’d be open to running such a post?”

Then took a rapid turn for the worse -

“I do appreciate that it’s a difficult topic, and that it’s not the sort of subject matter that you’ve typically covered on Mum’s the Word, but it’d be great to work with you on this if you would be willing to consider publishing the piece.”

See, if this SEO guy had done even a modicum of research then he’d have realised that this is EXACTLY the sort of post I publish on my blog, in fact I already have several on this very topic.

If he’d used the tiniest amount of initiative or imagination, he might’ve typed the word ‘cancer’ into the very simple and prominently placed search bar at the side of the page and come up with no less than a dozen posts around the subject.

If he’d thought to engage his, no doubt, elite search skills he’d have realised that in 2011, my Stepmum lost her battle with cancer and I spent a long time trying to get my head around it, trying to work out how to process it, how to guide my infant daughter through it all and how to get our lives back on track afterwards. He’d have seen that I now run Race for Life every year in Lorraine’s memory and that I do as much for Cancer Research as I can.

This isn’t the first time I’ve dealt with poor marketing from this particular charity and I can’t help but wonder who makes the decisions regarding their marketing budget, given that they’re using aggressive telephone sales people and insensitive SEOs.

The sad part is, (as my friend Ruth mentioned after I shared with some blogger friends how sad I was about all of this) if they were to be a bit more sensible and use what would probably equate to a minute portion  of their marketing budget to employ bloggers to help them with their blogger outreach programme I’m 100% certain that they’d be a lot more successful and would circumvent the very real risk of alienating a lot of people.

As I pointed out in my reply to this person, just off of the top of my head I know one blogger who’s child is battling leukemia, one who’s Mum has beaten breast cancer and several others who lost friends or family to this horrible disease and I hope to goodness he hasn’t used the same approach with them that he did with me.

Over to you, Cancer Research

(I’m including follow links to the Cancer Research page in this post. Despite me criticising their approach, I think they’re a great charity and support them wholeheartedly)

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Silent Sunday

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Race for Life

Today is the day. I’ve spent weeks badgering friends and family, posting on Twitter and Facebook, generally shaking my virtual collection box in the direction of anyone who’ll listen. My aim was to raise £200 and at last count my total was sitting at £205. I know I have a few more sponsors to collect too, so I’ve well and truly smashed my total. All I can say is thanks. If you know me and what my family has been through in the last few years, you know how much this means to all of us.

I know £205 isn’t much, in the grand scheme of things, but it could help to make all the difference. To help find a cure for this horrible disease and stop people from suffering and dying unnecessarily. What I’m doing is nothing, a minor blip on cancers radar. But I’ll put on my trainers and my pink vest and hope that by walking a few miles in the Sunday morning sunshine, I’m doing something to help.

Denice, Rob, Grandad, Lorraine. This is for them.

There’s still time to sponsor me, just go to http://www.raceforlifesponsorme.org/jaynecrammond

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John and Rene.

When I was a kid, my Nan and Grandad lived in a place called Usk Road in Aveley. I remember thinking that Usk Road sounded really exotic, even though I knew it not to be. They lived in an end-of-terrace house with a big garden and a little side gate with a brick arch that went between theirs and the house next door.

The house always smelt the same, a mixture of Imperial Leather soap and new carpets. It was spotless and I was fascinated by the nick nacks that were scattered around – the Toby jugs on top of the unit in the living room; the Teasmade in the spare room; the Sylvanian Families video that they kept for my cousins and I.

None of this fascinated me more than my Grandad John’s shed.

Grandad’s shed smelt (and still does) of creosote and had a million interesting and complicated-looking tools hanging from the ceiling and walls. There were vises attached to a work area and things with menacingly sharp blades kept on high shelves. It was in this shed that Grandad made my dolls house. This dolls house was better than any that I have ever, to this day, seen in a shop.

The walls were covered with brick dust and individually pointed with white paint, each brick lovingly created by Grandad’s patient hand. Every room had an electric light with its own light switch, powered by a big battery compartment, hidden under the roof. The roof had individual tiles, cut out of a terracotta coloured lino. The rooms were carpeted and a proper staircase ran through the middle of the house. Then came Nanny Rene’s work, individually made curtains, duvets, light shades and linen, all in co-ordinating colours.

The attention to detail is incredible, made possible by the loving care and teamwork of Nanny Rene and Grandad John. It’s still in my Mum’s loft – I must get it down and give it to Sausage to enjoy.

In the early nineties, after Grandad retired, he and my Nan decided to make their dream move to a place with a slower way of life and chose Lowestoft, a little seaside town in Suffolk. Every year, they’d drive back to Essex at the start of the penultimate week of the summer holidays and take my cousin and I back to Suffolk with them, where we’d spend a glorious week being taken on a different outing every day. Over the course of the week, we’d visit Great Yarmouth pleasure beach, Pleasurewood Hills, go for a boat trip along the Broads, spend a day shopping in Lowestoft town, go bowling, to the Sealife Centre, so many trips in such a short space of time.

I was talking to my Dad the other day about our weeks in the summer with Nan and Grandad and it occurred to me that it must’ve cost them an absolute fortune every year. Of course, as we got older the visits stopped and our lives moved on, but I still look fondly back on those times.

Sadly, we lost Nanny Rene (I feel I should point out, Rene is said like “Reen”) in 2004 and our little family hasn’t been the same since. We’ve grown apart and things have changed. The last time we were all together was at my Nan’s funeral. The day my Nan died, Grandad turned to me and said “Well, that’s it girl, I’ve lost my best friend. I suppose it’ll be me next”.

He’s lived on his own for almost eight years, suffering one illness after another, and a couple of weeks ago we received the news that he’s developed advanced lymphoma. I’ve been to see him a few times in the last few weeks (sadly, more times in those weeks than in the previous five years) and the thing that keeps striking me is his hands. My Grandad has always been a sturdy bloke, not the tallest, but always incomprehensibly muscular and solid. Now, he’s looking old, thin, withered and his hands look huge and incongruous with the rest of his body. But those hands are the hands that worked to provide so well for my Nan, Dad and uncles. Those are the hands that built us the most amazing toys. Those are the hands that always smelt of mint or tomatoes or creosote from hours spent tending his immaculate garden. And while I’ll be devastated when the inevitable end finally comes, I’ll be very happy to know that those hands will once again be holding Nanny Rene’s tightly, two best friends reunited.

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Walk

This is for my Dad.

If he were ever to read this blog, he’d know what it means.

The rest of you just get the privilege of listening to Foo Fighters for six glorious minutes.

Love you, Dad.

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Six Months

My Dad texted me today. It said “It’s exactly 6 months today since I lost my sweetheart”.

How can it possibly be six months already?

But I checked and it is. Six long months since we’ve heard Lorraine’s voice or seen her face. Six months since we held out hope, right until the last second. It’s sunk in now. Or at least, 99% of the time it’s sunk in. Then I’ll be sitting there and it’ll hit me like a ton of bricks. I can’t believe she’s gone.

I’ll always regret not spending more time with her, not getting to know her better, not putting in more effort. I feel guilty that I told my Dad that Sausage couldn’t call her ‘Nanny’ as she had two nannies already and it might confuse her, a ridiculous knee-jerk reaction of loyalty to my Mum. I feel guilty for not visiting more when she was ill.

I know that guilt is an empty and futile emotion, but it’s one that’s stuck with me over this past six months.

There have been times that I’ve worried about my Dad, worried about how he’s coping. There have been other times when I’ve looked him in the eye and been overwhelmed by sadness. Most of the time, I’m just so damn proud of the way he’s coped and the way he made a dying woman comfortable and happy. I can’t begin to imagine how he must feel, but I think his text speaks volumes.

“My Sweetheart”.

We miss you, Lorraine.

I’m doing Race for Life next month to raise money for Cancer Research. I want to do everything I can to be able to say that I contributed towards the effort to ridding our planet of this disease, once and for all. If you’d like to sponsor me, you can do so at Just Giving

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Melanoma – You know it can kill you, right?

Please read the comments before reading the first paragraph of this post. I jumped on something someone said and took it the wrong way and seem to have got things arse about face. Either way, the main content of the post still stands, just not the catalyst that got me writing it.

Apologies for the provocative title, but I’m feeling rather provocative and I need people to listen.

Yesterday, I read a tweet that bemoaned the lack of sunbeds available by 9.30am. I replied somewhat snarkily and said that I was amazed that people even use sunbeds these days. Maybe I shouldn’t have been snotty, I don’t really know the Tweeter in question and I guess people are free to do what they like, but after watching someone I love die from a disease that can be caused by these machines, it makes me wonder why the hell anyone would go near them?

Lorraine was an otherwise healthy 40-year-old woman when a ‘dodgy mole’ on her leg became malignant. I’m not sure if she used sunbeds, I think she said she had once or twice, but she lived in Jamaica for a portion of her adult life too, enjoying the sun and the easy way of life.

Lorraine’s mole was removed and as she had an aggressive form of melanoma, the doctors removed her lymph nodes in her right groin too as this was the logical place for the cancer to spread to. Unfortunately for her and us, although she had no lymph nodes for the cancer to attack, it went to her brain and her lungs instead.

She had radiotherapy which made her lose her hair and had just been accepted onto a trial for a new drug when the cancer got the better of her. The melanoma in her brain (and yes, when melanoma spreads it’s still a melanoma, unlike other cancers) caused her to have seizures, become confused and made the pressure in her skull build. On the day she died, I stroked her face and was amazed by how hot she felt. They explained that the pressure around her brain was giving her a fever.

Lorraine died 20 days after her 42nd birthday. Melanoma killed her.

This post may seem harsh or insensitive and if my Dad or Lorraine’s family ever read this, I hope they understand the intention behind this post.

Melanoma is not just about having a mole removed and moving on. Melanoma is aggressive and it can end your life. Think about this next time you decide you want a tan at any cost. Think about this next time you look at your kids and decide not to wear sun screen.

Some facts about Melanoma:

  • Unlike most malignancies, malignant melanoma is more common in women than men. In 2008 it was the sixth most common cancer in females. Between 2007 and 2008 malignant melanoma moved from the ninth most common cancer  in males to the sixth most common. This is due to an extra 600 cases being diagnosed in males in 2008 than in 2007.
  • In 2009 in the UK, 2,633 people in the UK died from skin cancer.
  • If diagnosed at stage 1A, 88% of patients will live for 10 years. If diagnosed at stage 4, that number becomes 7-19% living past five years.
  • Overall, people from higher social classes tend to have better survival rates than people from lower social classes.

I know this may be a shocking or depressing post for the Easter weekend, but if I can make just one person wear sunscreen when they go out in the sun, I’ll have done something really important.

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Grief and Faith.

Some of you may know and some of you may not know that my stepmum passed away at the end of last year and while we’re all dealing with it, there are times when it still feels very raw and painful. On a seemingly unrelated note, Husband was bought a book on Buddhism by my little sister for Christmas and when reading it, found the story of Kisa Gautami. It goes something like this:

Kisa Gautami was a young woman from a wealthy family who was happily married to an important merchant. When her only son was one-year-old, he fell ill and died suddenly. Kisa Gautami was struck with grief, she could not bear the death of her only child. Weeping and groaning, she took her dead baby in her arms and went from house to house begging all the people in the town for news of a way to bring her son back to life. Of course, nobody could help her but Kisa Gautami would not give up. Finally she came across a Buddhist who advised her to go and see the Buddha himself.When she carried the dead child to the Buddha and told Him her sad story, He listened with patience and compassion, and then said to her, “Kisa Gautami, there is only one way to solve your problem. Go and find me four or five mustard seeds from any family in which there has never been a death.”Kisa Gautami was filled with hope, and set off straight away to find such a household. But very soon she discovered that every family she visited had experienced the death of one person or another. At last, she understood what the Buddha had wanted her to find out for herself — that suffering is a part of life, and death comes to us all. Once Kisa Guatami accepted the fact that death is inevitable, she could stop her grieving. (source)

If you’ve read this blog lately, you’ll know that I’ve been musing over faith, mortality and eternity and while Christian teachings allow us to take comfort from the idea that we’ll live forever in Heaven, what I really like about the Buddhist parable is that it makes no promises. It doesn’t speak of clouds and winged angels and halos, it simply teaches us that in grief we are never alone as everyone has suffered loss and that it is an inevitability in life.

I don’t know why, but I find this very comforting and have felt strangely peaceful since Husband told me. What do you all think?

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Enough is enough.

Excuse the dry skin, it’s still healing

Let me start this blog post by saying that I consider myself to be a charitable person. When I was a kid, I went door-to-door selling raffle tickets for Meningitis Trust, as an adult I’ve organised events for Lupus UK, I spent a whole year giving up my Saturdays to work in a Child Contact Centre and back in May I ran Race for Life to raise money for Cancer Research. A few weeks ago, I even went and had a black ribbon tattooed on my leg for melanoma at an event organised by one of Husband’s good friends where the proceeds of every tattoo was donated to cancer charities.

But today, I can unequivocally say that I’ve had a gut-full of charity. Whilst walking up the high street to do the banking for my boss, one of those obnoxious charity collectors (who get PAID to fund raise…can you explain the logic of that to me?) stepped towards me and starting shouting her script at me, telling me that it was my responsibility to end poverty in Africa. On account of the fact that a) I didn’t have time to stop and b) I have a moral objection to that type of fundraising, I politely told her that I didn’t have time to stop and carried on walking while she stood behind me muttering.

On the way back down the high street after I had run my errands and much to my complete and utter incredulity, the very same chugger (as I’m reliably informed they’re called) tried to stop me again, this time by physically blocking my path. I told her that she’d already tried to stop me and that I STILL didn’t have the time to stop, only for her to make facetious comments about me as I walked away. Now, is it just me, or does that seem a little bit out of line?

This evening, we had Husband’s father and his wife over for dinner as she’s American and we wanted to give her a nice Thanksgiving dinner and just as they were leaving the telephone rang. I answered and a man introduced himself as a caller from Cancer Research. He thanked me for my money-raising efforts for Race for Life and asked me if I’d had a nice day. Next, he asked why I’d chosen to do it and I explained about Lorraine and how she’d recently lost her fight. He expressed sympathy and proceeded with his spiel, offering me the chance to give £8 a month directly from my bank account. I explained that I couldn’t afford to add to my monthly outgoings this close to Christmas, but said that if he was able to phone back in January that I may be able to contribute. He barreled on (I must add, totally ignoring the fact that I was crying on the other end of the phone, after he decided to tell me about the wonderful new treatments for extending the lives of cancer patients) pushing me to sign up. At this point, Husband had had enough of seeing me upset and told me to put the phone down, so I interrupted the bloke for the third time and told him that I needed to hang up.

As I’ve gone to great lengths to stress, I consider myself to be a charitable soul, giving not just money but also as much time and effort as I can spare too and yet I got off of the telephone this evening feeling as though I’d been completely wrung out by this charity worker. I don’t know if it’s the policy of Cancer Research to treat people this way, and I’d never speak ill of a charity which has done so much, but I really feel that these aggressive methods of fundraising are a step too far. I feel as though I’ve been harangued in my own home, chased up and down the high street and generally treated like shit.

I won’t say that this has put me off of donating to charity, I’ll always give where I can. But I hope someone, somewhere, will read this post and maybe think about the way that they approach people. I don’t deserve to be made to feel guilty and reminded of personal grief. I’m a good person and this isn’t the way to make me part with my cash.

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Guilt, Grief and SSRI’s.

Let me start by saying that this is one of those blog posts where I feel a bit like I’m ripping my guts out and smearing them all over the page (apologies for the rather visceral visual…). It’s very personal and there’s always that worry that someone will take what you say and use it against you. In short; be gentle with me.

As you can imagine, the past few weeks have been something of an emotional rollercoaster for myself and my family. Grief is an unfathomable creature, making you feel one way and then another without so much as a moments notice. I imagine I’ve been quite difficult to live with, really.

I’ve suffered most of my life with some form of anxiety or depression, remembering even as young as four or five the abject panic that set in when I was away from my Mum, the cutting out of primary school 5 minutes after I was dropped off and chasing my mum or nan up the road, begging not to be left. Anyway, the point is, I’ve dealt with it for about 20 years and have largely managed to resist taking tablets to get by. I’ve seen counsellors, been given diagnoses and had them taken away again, but I’ve always maintained that there’s no point in giving myself a false high if there’s something underlying that’s causing my issues. I’m anti-paperingoverthecracks, if you will.

A couple of days ago, Husband was listening to me pour my heart out for the millionth time, about how sad I feel, how I feel completely and utterly cheated out of the chance to get to know Lorraine better, something which I took for granted while she was alive and am completely rueing now. At her funeral, I found out she was a fan of The Only Way is Essex and Alanis Morrisette, two things we have in common that I never knew about (despite THIS post. Yes, I know, I got sucked in. What are YOU saying?!) I’m struggling to get my head around the fact that she’s no longer here, my heart actually physically aches for my Dad when I think of how devastated he must be, how he’s got to go about his daily life despite the fact that his world has been torn in two.

My family life is suffering because of my grief, and while I know this is normal, I hate the fact that I’m grumpy, snappy and prone to tears at the drop of a hat. So, I asked Husband, shall I go to the Doctors? Well, he said, you know they’ll just offer you anti-depressants. And it’s true. I don’t know if it’s my surgery or all of them, but ours seem to have a stash of pre-printed prescriptions. Anything physical; antibiotics. Anything mental; anti-depressants. It’s like a conveyor belt where you get handed one or the other, no questions asked.

So, do I take them? I came to the conclusion that it’d be largely pointless. Hear me out, this is not me casting judgement on people who DO take them. Some people’s depression genuinely does come from their body’s inability to process serotonin adequately and they need a helping hand. My ‘problem’ isn’t chemical, it’s real. I could take anti-depressants but when the time came for me to come off of them again, the ‘problem’ will still be there, Lorraine will still be gone and I’ll still miss her. Sure, they’ll give me a boost for now, but I still think I’d be better off going through the natural process and dealing with each stage of grief as it comes.

I was explaining to Husband last night that although I still feel overwhelmingly sad at times, some of that sadness is giving way to a really intense anger that was worrying me. He gave me a wry smile and told me to Google ‘stages of grief’. Step One, denial, Step Two, anger. So while I might be feeling awful at times, at the very least I know I’m normal. And that’s something to be positive about, right?

I don’t know how long it’s going to take and I feel guilty for saying I even want to feel back to normal already, like I’m doing Lorraine a disservice by not permanently grieving, but I know for a fact that it’s not what she’d want. She adored Sausage and would be gutted to think that I was making her suffer with my behaviour. So, I need to use every ounce of mental strength that I have to stop me slipping back into the mire of depression, as it can be so bloody hard to get back out of.

Wish me luck…

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